Beth Goodier was diagnosed with Kleine-Levin syndrome in 2011 after she fell asleep and didn't wake up "properly" for months, the reports. Since her diagnosis, Goodier, 22, has spent the past five years living at home with her mom in Stockport, England, only waking sparingly during months-long episodes.
KLS, also known as "Sleeping Beauty Syndrome," is an extremely rare condition characterized by excessive amounts of sleep, altered behavior, and a reduced understanding of the world, according to the . Goodier experiences all of these symptoms — when she awakes mid-episode, she speaks in a baby voice, throws tantrum, and binge-eats junk food. In between episodes, she told the in 2014, she goes to the gym and tries to eat as healthily as possible to combat the symptoms she can't control: "Anything I can do to help my health I'll do because I'm so unhealthy in other aspects."
Goodier's consulting neurologist Guy Leschziner told the station people are typically diagnosed with the syndrome during their adolescent years, "a crucial point in terms of their education, in terms of their social life, in terms of their family life and in terms of their working life." As patients are asleep for most of these developmental years, "it's a very devastating condition." Leschziner said most people grow out of the condition in 13 years on average. Goodier shows no signs of that yet.
"It breaks my heart to see the best years of her life slipping away," her mom Janine told the Daily Mail. She also said Goodier tries to maintain normalcy while she's awake by seeing friends and her boyfriend, a 25-year-old teacher Goodier met during "an awake phase" in 2013.
Goodier chronicles her episodes on . Read more about her .